I Dream of Movement

Parkinson’s disease is classified as a movement disorder. The human body needs a chemical that certain cells in the brain were designed to produce. That chemical enables the body to move correctly. For some reason, as many as 20 years ago, those cells in my brain started to die. After about 80 percent of them were dead, my body started acting peculiar. It began to ignore what my brain was telling it to do. My body also began doing things my brain was not directing it to do. My body began to rebel. With the demise of those certain brain cells, the authority my brain had over the actions of my body began to break down, but not completely. My brain is still in control for the most part. But slowly, different systems of my body are acting on their own. This is happening with both types of movement, voluntary movement and involuntary movement.  With voluntary movement, like walking, my brain tells my legs to move a certain way to achieve a normal walking stride. My legs refuse and start a kind of shuffling movement. Without that chemical those brain cells previously produced, my legs ignore my brain’s instructions. They move the way they want too.

Then there’s involuntary movement, like digestion. When I eat, my brain tells my digestive tract to move the food through my body at a certain rate so the good parts of the food can be used where my body needs it and any waste can be disposed of all in a timely fashion. But again, without that chemical, everything slows down. My brain tells my digestive system to move things along at the normal rate. Instead, the system slows and backs up.

As time goes by, my body’s rebellion is intensifying. More systems are affected. My brain’s ability to maintain control is being compromised. With others that have this condition, movement has been known to stop. They refer to it as “freezing”. A person will be shuffling along and all of a sudden, their legs will just stop. They can’t move. When this happens, the persons brain needs a reboot. Many times, this can be accomplished by placing a small obstacle on the floor in front of the frozen person. The presence of this obstacle does something in the person’s brain that allows it to direct the legs to move again. Some people with this challenge use a walking cane that will shine a laser beam across their path that appears as an obstacle to the brain and they can move again.

I have heard people say that when an ability is lost, like sight or hearing, the person will dream and in the dreams what they lost is regained. They say the same regarding people that lose a limb. In their dreams, they are whole and can run and throw a ball. When I dream, I dream of movement. My body does what my brain tells it to do when and how my brain tells it to.

To get good at any physical activity requires what is called muscle memory. Repeating a certain movement until the body moves that way without even thinking about it. It’s necessary to do this if you’re learning to shoot a gun well or throw a football. My body has lost its memory. When I dream of movement, I wake and I remember the feeling of the movement in the dream. Then with the first movement of the day, the truth that my body muscles have lost their memory becomes instantly clear.

They say Parkinson’s is not fatal. That’s good. I haven’t heard of anyone’s heart or lungs that have stopped because of the lack of dopamine.” That’s the name of the chemical that the dead cells produced.  So, things could be much worse.

I just have to deal with my dreams keeping the memories of movement alive.

Coping Mechanisms

I have Parkinson’s disease because my brain no longer produces a chemical called dopamine. My body needs this chemical to move and function correctly. My brain can no longer produce dopamine due to the fact that the cells that make it are dying. It may be ten to twenty years after they start to die that a person will notice any significant symptoms.

There is no test a doctor can do to diagnose Parkinson’s disease. It is a symptom diagnosed condition. When I saw the neurologist in 2009, I was referred to him by my family doctor after I described some things I had noticed going wrong. The neurologist spent about thirty minutes asking me questions and having me move different parts of my body. When the 30 minutes were over, he looked at me and said, “You definitely have Parkinson’s disease.”

He prescribed some pills for me to take that trick the brain into thinking they are dopamine. He told me that PD is a progressive, degenerative condition which means over time it will continually get worse. The good news he told me was that it isn’t fatal. People die with Parkinson’s, not from Parkinson’s. He also said most people have about ten years to continue working before the PD symptoms worsen to the point that working is no longer an option. But it’s different for everyone.

The insidious part is even though it may take twenty years before you know you have it, symptoms start almost immediately after the first cell perishes. Looking back from here, I recognize what my first symptom was. About twenty years ago I lost my sense of smell. That is a common non-motor symptom of PD. But of course, by itself there is no way to recognize it as a part of Parkinson’s. Slowly over the years, more things would show up from time to time that were troubling, but they all seemed unrelated. About 15 years ago, I started really suffering from depression and anxiety for no reason. Life was good. Great wife…great kids…great job…nice house. Life was exceeding my expectations. So why couldn’t I enjoy any of it and why was I so miserable. Again, I had no idea depression is a common PD symptom.

When people are confronted by something unexplainable and difficult to live with, we develop Coping Mechanisms. They are things we do to make the pain tolerable. Whether the pain comes from physical or mental sickness or heartbreak or loss. Hopefully, the mechanism we develop is a positive one, not alcohol or illegal drugs.

For the depression, I developed the habit of walking every day. I found a tree lined road close to my house and I would walk its length and back. Rain or shine, day or night, I would walk. Also, when it was warm out, every Sunday evening I would drive to the prettiest lake and watch the sunset.

I would of course take God with me on these walks and to these sunsets, but He would only listen. I knew He was there and I knew He was hearing me. I trusted Him enough to just let Him stay quiet.

 

Then one day, my wife and I were walking somewhere. She looked at me and said, ” Your left arm isn’t swinging when you walk.” We walked a little more and sure enough, it wasn’t. It just kind of hung there awkwardly. I started to think about all the weird things that had been accumulating over the years and the next time I saw my family doctor, I told him about all of them. When I had finished, he said, ” Sounds to me like Parkinson’s. That’s when he made the appointment for me with the neurologist.

I had two initial reactions to the news that I had PD. First was a profound feeling of relief. What’s worse than suffering is suffering for no apparent reason. Now my suffering had a name, Parkinson’s disease. Second, I immediately began to develop my coping mechanisms.

It’s been a long and ever-changing process. As I lose my ability to do things, I replace them with alternatives when I can. One of the things I have lost that is the hardest to adjust to is the inability to walk more than a short time. My walk is now a shuffle and after a short time I have to sit. There is also the constant danger of falling, (one of the two main reasons for someone with PD to be hospitalized. The other is choking). So, to keep my spirits up and allow me to get outside and get some exercise, I ride a bike every day. That’s my #1 coping mechanism. Of course, not the two-wheel kind. I would go maybe two ft and fall over sideways. Mine has three wheels. One in the front and two in the back. It’s called a recumbent delta trike.

I thank God for my trike. Other than when I’m sleeping, the only other time I don’t feel the Parkinson’s is when I’m riding my bike.

 

P.S. I have discovered that most of the time, God works silently.

 

 

The Selfishness of Sickness

When you have a progressive, degenerative sickness like Parkinson’s disease or any long-term health condition or injury, there is a tendency to become selfish. We are told by God to consider other people’s needs above our own. Most of my life I have known this command and have tried to live it. Now that I’m sick, I’m finding it more difficult to do. The requirements and demands of the disease are getting in the way.

Growing up a Christian trying to live an unselfish life, I know how hard it can be to deny ourselves and put someone else first. I understand why God asked us to do this. It’s one of those things that makes sense after the fact. The root of selfishness is pride. Selfishness is loving ourselves instead of loving God and others.

When I wasn’t sick, being unselfish was something I could choose to be. It was just a matter of making the right choice. There were no obstacles keeping me from choosing to be unselfish.

Now, Parkinson’s disease is conspiring with my body and brain to look inward rather than outward. Outward to the needs of others is where my gaze should be fixed.

Before my sickness, the moment by moment decisions and needs were mostly under my control. A situation would arise and I was free to decide what to do. A need would present itself, either for me or someone else, and I was free to fulfill or deny the need. What I found out about God was if I kept my attention on the needs of others, my needs would be taken care of. I had very little reason to look inward at my own needs. God always provided. I was free to consider other’s needs and the needs of my wife, my children, family, friend’s, employers, co-workers and strangers. Anyone that crossed my path. Many times, I failed in my attempt to live an unselfish life, but to live unselfishly was my desire.

Today, as I write this I find I am becoming a selfish person. A person that is more and more considering my needs more than the needs of others. I still know that God requires me to consider others more than I consider myself. It’s getting harder. When every part of my body is screaming, ” I’m in pain,” or ” I don’t want to move,” or ” I’m going to move whether you want me to or not,” it’s hard not to fix my gaze inward. When I refer to the selfishness of sickness, I can only speak of Parkinson’s disease/ Arthritis. (I have not spoken with many other sick people about what is being screamed at them, but I would imagine the screams are similar to mine and they are also being drawn inward).

These are a few of the obstacles Parkinson’s has placed in my path to being unselfish.

Making it difficult to find a place to be comfortable and remain comfortable for more than a short time.

Taking away my ability to walk more than a few steps without becoming exhausted.

Taking away my ability to stand unaided for more than a few minutes without having to sit.

Taking away my ability to speak loudly and clearly enough for people to understand what I am trying to say. With that, taking away my desire to speak because of frustration and embarrassment.

Taking away my desire for normal conversation because of fatigue and frustration.

Taking away the pleasure of eating out in public because of the fear of choking.

Taking away the pleasure of just leaving my house because of the fear of falling or just getting into a situation out of my control.

These obstacles and others that just show up regularly are making it hard to not be selfish. They cause me to want to always control my surroundings to meet my needs.

I know that God still wants me to do what He has asked us to do. He wants me to love Him. He wants me to trust Him. He wants me to love those around me. Because I am sick, those around me are fewer than before. My ability and opportunity to touch people’s lives is diminishing. I also know that being sick does not excuse me from being unselfish.

I was talking with my wife last night. I told her that I was concerned about the future and that my life was getting smaller and smaller and could soon disappear. Her response resulted in one of those moments that had the possibility of changing the course of the rest of my life. She told me I was fortunate and in a unique place. She said most Christians desire to know God better but the tyranny of the immediate, the demands of life and of time does not allow them to spend the time with God that they would like. She said I have been set free from that. Even though my body is bound, my mind and spirit are free to pursue God without limitation. Now that’s interesting. As long as my mind and spirit are free, I am free to live an unselfish life. It doesn’t matter if it comes to the point that my body can’t leave the house. I can still live the life God wants me to live. I can commit acts of unselfishness despite any obstacle placed in my path.

As I live out the rest of this blink of an eye that’s my life here on earth, I will probably be a tad selfish regarding what I must do to live a life with Parkinson’s. I may need to use tools to cope with the effects of the disease that will appear to be selfish. But my heart’s desire and my resolve will be to consider you and your needs above my own, whenever and however I can.

Beginnings

Even when you have more years behind you than are ahead of you, there are beginnings. They become less frequent as the years go by, but they never stop until you stop. Every moment is an opportunity for something new to begin. I have been married for 33 years and raised 3 people. I have worked ever since I was 15. I have lived a life that has risen above my expectations. That doesn’t mean the sun has always shined. It has rained. But for some reason the sun has been brighter and it has rained less often than I imagined it would. It’s hard to say where the expectations that my life has risen above came from. I just thought when I got here and looked back, I would not have enjoyed my life as much as I have. I feel there are two primary reasons for this.

#1 – I have great parents.

#2 – I found Jesus, (or He found me,) when I was 6 years old.

Because of those two factors, I have been able to make more good choices than bad choices. I don’t know why I had the parents I had or why God allowed me to find Him. I don’t know why other people have bad parents, or were born someplace where they didn’t find God. I do know that we live in a world we created. A better way to say it is, we live in a world we recreated. God created the world and mankind perfect. A part of that perfection was He gave us the power of choice. When we were confronted with the first choice between right and wrong, we chose poorly.  Our choice recreated the world. From the moment we did this, our choices from day to day and moment to moment have set into motion… disease, hunger, poverty, violence, injustice, perversion, lying, selfishness and everything else that flies in the face of perfection. We are responsible for all that is wrong in the world. Our bad choice even threw off the balance of nature and the universe. When what we call “a natural disaster” happens and things are broken and people die, the question is asked, “Why would God allow this to happen?” When what should be called “an unnatural disaster” happens, it’s our fault, not God’s. It’s our fault that there is hunger and poverty in the world. Even in this fallen world, we have the resources to meet most people’s needs…we just choose not to or turn away.

God is good, all the time. Satan is bad, all the time.

It was up to us which one to choose when the first choice was made. It’s been up to us ever since.

 

 

 

 

 

 

 

More Than God

Christian’s get sick.

The first time the words “Parkinson’s Disease” were applied to me back in 2009, I started to think about healing. I believe that the supernatural removal of sickness and injury by God is real. I believe that my family and I have been the receivers of supernatural healing. It’s like my belief in the other things we thank God for…wisdom, protection, provision, joy and everything else that I believe God supernaturally gives us. God is active in our lives and cares about us. I also believe His ability to provide these things for us is limited. Limited not by Him, but limited by the fact that man changed God’s original universe.

We, mankind, started out perfect. God made us that way. We didn’t get sick, we had no lack. Everything was provided for us and it was all good. But we were not satisfied with everything. We wanted more. We wanted something we were not made to have. We wanted something more than God. We wanted something apart from God. We wanted to be God. And when a creature that had wanted the same thing, and had suffered the consequences, offered those things to us, we said yes. From that moment, we have suffered the consequences of wanting more than God and the choice of saying yes to the creature’s offer.

But instead of giving up on mankind, God has been working ever since to restore us to our original state of perfection. He desires our restoration so much, that He was willing to sacrifice His Son to achieve it. Everything He has done here on earth and beyond, ever since we believed the lie that there is anything more than God, has been done for our restoration. But even though His act of offering His Son provided the way for mankind to be restored, we have to want to be restored and accept it the way He provided.

We still live in a world that offers us more than God, even though those things do not exist. We still live in a world that offers life apart from God. It is an illusion. But we are still given the choice of God or more than God. And most still choose the illusion.

We, the people that choose God, still have to live in a world that was given away. That is the result of mankind wanting and choosing more than God. We gave it away to the creature that offered us the illusion that there was more than God. God had given the world to man to have dominion, and we gave the right to be here and work here to the creature. Even though God has provided the way for our restoration to perfection, we are still born and live out our lives in bodies that are made of the same material this fallen earth is made of. And we are subject to the same imperfections. We get sick. We get injured. We are born with flaws. We can find ourselves in a place of not having the basic things we need to live. The whole universe from our bodies to the stars, continually groan for the sons of God to be revealed. That has not happened yet. When it does, we will no longer get sick. Our bodies will never need healing. And we will return to the perfection God originally planned for us. Until then, Christians get sick. It seems like, some get healed, some don’t.

 

 

Off In The Distance

There I am, off in the distance. I know it’s me because of all the years we spent together. I look pretty much the same as I always have, just smaller. Because of the distance, it’s hard to hear what I’m saying, and it looks like I’m moving in slow motion. Those that are passing me by are trying not to look at me, but I can see their sideways glances when they think I’m not looking. I do see them, but I’m not troubled by them. The truth is, I’m glad they chose to see me. It means I’m still here. There are rare moments when I am afraid they won’t look anymore. I’m afraid a time may come when I will look, and I won’t be there. But these are just brief moments.

 

There it is, off in the distance: The world that was once mine. The world used to be a lot bigger and was full of things that were free for the taking. The world is much smaller now, and much of what had been free for the taking, things that only required me to reach out and grasp them, are now out of my reach.  As the world grew smaller, the distances grew longer. Time slowed down.

 

There they are, off in the distance….standing beside me…standing with me. They don’t seem to notice I’m different than I used to be. I try not to be different than I used to be, but most of the time it’s not up to me. I’m glad they are still there, though they seem to be fewer than before. I guess that’s because the world is a lot smaller; so there’s not as much room as there was before.

 

There He is, off in the distance…giving me hope and joy…making all my self-perceived challenges fade and revealing a future of effortless movement that will go on forever. God is encouraging me with the knowledge that even though the rest of my journey may be slow and unsteady, once the distance is crossed, and I arrive home, what is waiting for me is so wonderful, that all of the pain of this life will be forgotten. That’s when my true journey begins: My journey with God that will last forever.

Cries From Heaven ( a short story )

I was on vacation on Sanibel Island. This was the third consecutive year my two best friends and I had driven from Orlando to this island we had grown to love. The plan was to get away from our normal lives for a week. The three of us worked as veterinary techs at three different animal clinics. All of us were born in the same year and at the same hospital, Orlando Regional. Despite living in the same city and doing the same work, we had never run into each other. We had attended different high schools. We met one Saturday shopping at the Mall at Millenia. We were each searching for the perfect swimsuit and have been best friends ever since. The fact that we worked for different animal hospitals made it possible for us to take the same week off each year and vacation together. This year we rented a condo for a week at the Oceans Reach Resort. We made this choice because we discovered in our search for the perfect place to spend our vacation, the Oceans Reach was the closest condo complex to the beach we could find.  Vacationing together had many advantages for three single young girls. Cost savings, of course. We would also watch out for each other for protection (safety in numbers). We would watch over each other when it came to guys. Three girls on vacation on a tropical island is to guys like blood in the water is to a shark. So we protected each other from making relational mistakes. We set rules for ourselves. No guys in the condo. No single dates. All for one and one for all. That meant even if only one of us had a date, the other two would also go on the date. We would always stay together, no matter what. We very quickly discovered that there were always enough guys to go around, so no one ever had to go along on a date alone.

Each year we would make sure to eat at all our favorite restaurants. One called The Bubble Room is at the top of the list. They always had great food, a fun atmosphere, and huge slices of cake we would purchase to take back to the condo for dessert later in the evening. This year it was just as good. And as usual, when we arrived, it wasn’t very long before the sharks started circling. Of course, meeting guys and enjoying their company was a big part of our vacation adventure each year. The sharks circling was something we looked forward to. If it didn’t happen, we would be disappointed. It was fun to be three young women in this tropical paradise. We would play the usual games to size up the sharks and decide if they were worthy of us.

Then, out of the corner of my eye, I saw Jon.

We were sitting at our table eating our food when I noticed him. He was breathtaking… sun- bleached long blond hair, a deep bronze tan and a chiseled body. He was wearing a white button down shirt, untucked and spotless. He had on a pair of classy looking jeans with just the right tightness to reveal the strong muscles of his perfectly shaped legs. On his feet were flip flops that had seen a good number of miles. There were two guys with him and they were walking directly towards us. As they came closer, my friends and I  prepared ourselves. But the unexpected happened. They passed right by us without a sign of knowing we were even there. We were surprised and slightly insulted.

The boys stopped at the corner pool table and started to play a game.  My friends and I got over the obvious rejection and turned our attention back to our grouper sandwiches and cold slaw.

A short time later, we got that shark bait feeling again. There were two other guys approaching our table and this time it was apparent that we were the target. We noticed these two earlier because of a disruption they had caused with two other girls. They were loud and slightly drunk then, and unfortunately for us, had been drinking ever since. It was obvious that now they were very drunk. When they arrived at our table, they immediately began making rude, loud comments along with suggestions that we go with them to “really have some fun”.  As they started to pull on us to get us to go with them, I heard a strong clear voice come from behind me. “It looks to me like these nice girls don’t want to go with you.” I turned and looked past the man that had my arm to see whose voice it was, and saw it belonged to Jon. I guess when our assault began, Jon and his friends put down their cue sticks and followed the noise. Now the two guys that were trying to force us to leave had three guys behind them. I heard Jon’s voice again. “ I suggest you take your hands off them,” he said. One of the men replied, “I suggest you mind your own business”.  Almost immediately, I felt the hold on my arm loosen and I heard what sounded like choking. A second later, I was free. I turned to find the guy that was pulling on me in the firm embrace of Jon. Jon had a choke hold on the guy’s neck and was pulling him to the exit. The guy’s face was turning colors as they went. They were closely followed by the other one being carried by Jon’s two companions. One had the creep by the feet, and the other was carrying him under his armpits. There was a stream of blood flowing from the second man’s nose.

After a few minutes, Jon and his two buddies returned to the restaurant and this time walked straight to our table. We quickly realized they had saved us. They assured us we would not be bothered by those two again. We invited them to join us. They sat down and after the introductions, we began to get to know each other. Almost immediately, the conversations split up into twos. Jon started to direct his conversation to me. He asked the normal get to know you questions and I answered them. Then it was my turn to ask him questions.

He told me that the three of them had met 3 days ago on a beach on Captiva, an island just to the north of Sanibel. The two islands are connected by a small bridge. Actually, they did not meet on the beach but about 200 ft off the beach, in the Gulf of Mexico. They had arrived at the beach at around the same time, but separately. They each had a surf board and had pushed off into the water. They noticed each other 150 ft out and had stopped together about 200 ft from the shore. All three had the same puzzled look on their face. The water was completely calm. Not even a ripple. No one had told them that the Gulf was usually not the best place to surf. They realized that must be why they were the only ones along the whole beach that were on surf boards. They sat there, side by side like chess pieces. Floating almost motionless, waiting for the wave that would never come. Finally, they looked at each other, sweat dripping off their chins. Without saying a word, all three rolled off their boards into the cool water and then remounted the boards and paddled in to shore.

When they got to the beach, they sat down under some trees and talked for a while. They discovered they were staying at the same resort. All three were single and unattached. They decided to change clothes and meet at the resorts tennis courts, play a few games and then meet for dinner that night. That’s why they were at the Bubble Room. That’s why they were available to save us.

After we finished our meals and bought our slices of cake, the six of us stood out in the parking lot for a while talking. One of Jon’s friends asked if we would all like to go to his condo to eat cake and watch a movie? We girls excused ourselves for a minute to talk. When we were far enough away from the boys not to be overheard and asked each other what we thought. We quickly decided because we would be together and they seemed nice, we would accept their invitation. It was 8:00, so we said we would stay until midnight. We got in our car and they got in theirs and we followed them to the South Seas Resort, just up the road from the restaurant. The resort was beautiful and the condo faced the Gulf.   We decided we were all too full from dinner to eat cake, so we agreed to watch the movie first and have cake later. After looking over the dvd choices, we chose the old classic, The Wizard of Oz. As we found our places to get comfortable to watch the movie, we paired up like it had been since the restaurant. It was Jon and me on the love seat and the other two couples on the couch. As the movie started, Jon sat close to me. Just about the time the Scarecrow and Dorothy meet, I felt Jon take my hand. He took it slowly and gently, probably so I wouldn’t be startled and pull away. I didn’t. We sat there, slouched and holding hands for the rest of the movie.

When the credits started to roll at the end of the movie, all three guys got up and said they were going to serve the cake. This was turning out to be a great evening. The three of them went into the kitchen and about a minute later, Jon came back out with an ice bucket in his hand. He asked me if I would go with him downstairs to the ice machine. I said “sure”. As we walked down the stairs, he reached for my hand and I laced my fingers with his. When we reached the first floor ice machine, we both gasped at the same time. Over the horizon of the gulf was the most beautiful moon I had ever seen rising above the horizon. Jon asked me if I would like to step out onto the beach to get a better look? I said yes.

We walked down a short path through some palms and palmetto bushes and came out onto a completely deserted beach. The moon and the ocean were breathtaking. Soft gentle waves rippled lazily onto the sand. We walked down to the water’s edge, my fingers still laced in his. I looked back towards the buildings and could see the lights of the resort shining through the palms. Jon asked if I wanted to sit for a few minutes. I again said yes. We sat there for three or four minutes enjoying the moonrise and the breeze from the gulf. I felt his hand release mine. Then I could feel his hand softly rest on the small of my back and slowly rise until his fingers were tangled in my hair. I turned to look into his eyes. But instead of the soft blue I had seen all evening, I saw something dark. Suddenly, his hand grabbed my hair and he pulled my head back violently. Instead of his pleasant voice, I heard an evil voice say, “Now let’s have some fun.” I tried to scream but he clamped his other hand over my mouth and nose. I was having trouble breathing. I tried to break free but he was too strong. In one motion, he pushed me all the way back and rolled on top of me. His legs were holding my arms down as he sat on my stomach. He continued to hold one hand over my mouth and nose and with the other, held my head down. I couldn’t breathe. I kept fighting and trying to scream until everything went black.

I awoke to the smell of garbage. My whole body ached, especially my head and the left side of my face. As my eyes started to focus, I realized it was dark. It was night. I was in some kind of small room with no roof and a big blue box in front of me… It was a dumpster! I was laying on the dirty concrete floor of a dumpster enclosure. I tried to remember how I got here but I had no idea. The last thing I remembered was being held down by Jon. What had he done to me? Why was I here? Where are my friends? With great pain I slowly got up. I could see from the light of a streetlamp that my shirt was badly torn and my shorts and swim suit bottoms were gone. I carefully squeezed passed the smelly dumpster and looked around. It appeared that I was behind a restaurant. There were some full length white cook’s aprons hung up on some nails on the back of the building. I took two down to cover myself, one in the front and one for the back. I looked  at my watch. It said 4:17. I slowly walked around to the front of the restaurant. I saw the sign, R.C. Otters.  At 4 am, the restaurant and streets were deserted. I started walking. The street was lined with vacation rentals. I walked along, looking back and forth until I saw a house with a light on inside. I could see through the window an older lady sitting in a chair, reading. I approached the door and knocked. I heard footsteps come to the door and a ladies voice ask, ” Who is it?” I answered, “My name is Crystal Wells. I’ve been hurt and I need help.” She said, ” Just a minute.” I heard footsteps walk away from the door and then some muffled voices. The door opened and standing there was the lady I had seen through the window and a sleepy looking older man. One look at me and the woman said, “Oh my poor dear!” She took me by the hand and led me to the kitchen and sat me down. While they introduced themselves to me, she got a clean dish towel, wet it, and started to clean my face and cuts. I heard the man, her husband it turned out, talking to someone on the phone. When he had hung up, he came over and told me the police were on their way.

When they arrived, a woman police officer sat with me asking me questions. I told her all I could remember. She then told me that hours ago my friends had reported me missing and they had been searching for me ever since. A short time later, my friends arrived, and after a tearful reunion, the police took all of our statements. The paramedics were there to examine me and care for my injuries. They asked if I had been raped. I said no. I’m not sure why I said that, because I really had no idea if I had been or not, blacking out like I did. The thought of going through some kind of exam after all that had happened to me seemed too embarrassing to endure.

The next two days were spent with the police trying to find out what had happened. We managed to find our way back to the condo where we had watched the movie. We found two of the guys there, but no Jon. They said they had never heard of a Jon. They held to the story that the two of them had picked up my two friends at the Bubble Room that night and ended up at the condo to watch the Wizard of Oz until the two girls left at midnight. They had never seen me before and didn’t know anything about a Jon person. So after all the questions and investigation, we didn’t have any idea what happened….and Jon was a ghost.

When the three of us got home, we spoke a few times but something had changed. I had changed. My two friends just became reminders of that horrible night. I found myself getting angry and isolated. I went back to my job and my life, but there was no joy in anything anymore.

After a month back home, I started getting sick in the morning. Every day I felt sick. Then I realized I had missed my period. I purchased a home test from the drug store. Standing in my bathroom, staring at the result on the plastic stick, I realized the life I had dreamed of living had just ended. I was pregnant. For a week after finding out, I called in sick at work and never left my apartment. I didn’t want to be a mother. A single mother. The mother of a child whose father beat and abused and raped me. I was angry. I hated the man that did this to me. I was angry at my friends that had failed me. I was angry at God for letting this happen to me. I was mad at myself for putting myself in the situation that allowed it to happen. I wasn’t going to be forced into a life situation I didn’t want or ask for or deserve.

The next Monday I started my research on how I was going to free myself from this. I made an appointment at Planned Parenthood. I heard they helped women free themselves from this problem. I talked with two women, filled out some paperwork and made the appointment for the procedure.

The day arrived and I was ready to get this out of the way and get on with the life I had planned. When I stepped out of my car at the clinic, I noticed some people on the sidewalk in front of the building. They were carrying signs. It looked like they were protesting about something. I didn’t pay any attention to them and walked to the entrance of the clinic. I entered the building and after a few minutes in the waiting area, I was ushered back to a room. They asked me to remove my clothes and put on the gown that they provided for me. A nurse came into the room and asked me to lay on the table that was in the middle of the room and put my feet in the stirrups. I was laying there trying to relax as much as I could when the doctor came in. He told me I had nothing to worry about and this would be over before I knew it. As he started, I was feeling discomfort.

Halfway through the procedure, I started to hear a baby cry. I asked the people in the room, “Why is that baby crying?” They listened and then the nurse standing next to the doctor said, ” There are no babies crying here.” She told me it was probably just my imagination and to ignore it. After a while, the doctor was finished. He stood, removed his gloves and left the room. As I got dressed and got ready to leave, I could still hear the cry. As I walked through the building to go home, I kept looking around to see if I could tell where the crying was coming from. When I went outside to get in my car, I again noticed the people on the sidewalk carrying the protest signs. I decided to walk towards them to see if one of them had a crying baby. No one did. What I did discover was that the signs they were holding had words on them like abortion and choice. And to my horror, the signs also had photos of what appeared to be tiny dismembered arms and legs. A frozen chill went up my spine and I felt like I was going to throw-up. These photos couldn’t be real. What they had just done inside that building was remove a glob of tissue. Not a baby. When I saw a woman coming from the group walking towards me, I quickly turned and headed to the parking lot as fast as I could. When I closed the door to my car, I could no longer hear the crying baby. But I had a very strange feeling. It felt like when my dad died 5 years before.  Leaving the memorial service, I felt an emptiness I had never felt before. It was like the world was suddenly empty. Now…the world feels even emptier.

I drove home and that night, I was awakened from a sound sleep. Somewhere, there was a baby crying. I tried putting my pillow over my head to stop me from hearing the cry, but nothing worked. What was strange was that it sounded like the same baby I heard at the planned parenthood building. Wouldn’t all baby cries sound the same to me? But this cry sounded different than other cries I had heard.

As the days went by, every few days I would hear that baby, but not always crying. Sometimes laughing, sometimes gurgling like babies do. After a while, even though sometimes the baby would wake me in the middle of the night, I slowly got used to hearing it. As time went by, the baby’s voice changed. It was like she was getting older. I say she because it was obvious when she got old enough, I was hearing the voice of a little girl. I got so used to her being there, I decided to give her a name. I chose Coral. When she started to say words, they were of a language I had never heard and did not understand. Regardless, sometimes it felt like we were having a conversation, even though I had no idea what she was saying.

Seven years went by. Life had found a new normal. I had finished college and started a new career. The days passed, one by one, and my life became what I would call ordinary…except for the fact that the world continued to feel empty, and I had an ongoing conversation with a young girl I couldn’t see.

One day, I was looking for a book to read at Barnes & Noble. I found a book called The Message and decided to buy it. When I got home, I discovered it was a bible. I hadn’t read the bible since Sunday School when I was 7. Out of curiosity, I opened it up and read a couple of pages. This bible was different than the one I remembered from childhood. There were no thee’s or thou’s. The words seemed familiar and even a little comforting. So I continued to read. I found I understood this bible. It almost felt as though the words were written to me. I continued to read. Every morning I would read a little more.

Ever since that horrible night on Captiva Island, I would regularly dream about the events of that night. Many times that night would invade my waking thoughts as well. Whenever my mind would take me back there, I found I could easily renew my hatred for Jon. I would also renew my anger for those I felt let me down. This renewal was something that became very familiar to me. It seemed as though I needed to keep those feelings close to me, especially my hatred of Jon.

Then one day, my mind went back to that night like it had so many times before. This time though, something was different. Something had changed. I thought back to the beach and Jon, but the hatred was gone. I remembered the story I had read that morning in the bible about  Jesus hanging up on that wooden cross, nailed there with spikes. As he looked down at the people that had done this to him, He said to his father, “ Forgive them, because they don’t know what they are doing.” Forgive…the word echoed in my head. Is that what is different? Have I forgiven Jon? The moment I had the thought, I knew it was true. But didn’t I need to hold onto the hatred? I couldn’t think of a reason I needed too. A deep feeling of release and freedom vibrated through me. I dreamt about the Captiva events the next night, but instead of waking up full of hatred and resentment, I felt joy. Life was much happier after that. But the world still felt empty.

For some reason the date I went to planned parenthood and had the procedure has stuck in my mind. October 16th. Today it was 12 years ago. This morning, I was in my living room reading my bible, when suddenly  everything went dark. After a few moments of fear and concern, it was light again. Except now, I wasn’t in my living room anymore. I was at the edge of a forest facing a green field with a sparkling, blue pond in the center of the field. It was a clear fresh morning. I noticed a young girl playing at the edge of the water. I saw a man sitting on a rock a short distance away. He appeared to be watching over her. He motioned for me to come over to where he was and patted his hand on the rock inviting me to sit next to him. I walked over and sat down. He said hello. I said hi. Then he looked over at the girl on the beach. She was making a sand castle. He said, “Isn’t she beautiful?” I looked over to where the little girl was playing and as I was about to answer him, she turned, looked at me and smiled. I fell to my knees. Tears filled my eyes. I began to sob. I knew the moment she looked at me, she was my daughter. The baby I had aborted 12 years ago.

 

She ran up to me and threw her arms around my neck. She whispered “mommy” softly in my ear with the same voice I had heard the last 12 years. I cupped her face in my hands and kissed her cheeks until they were red. I looked into her beautiful blue eyes and said,” I love you.” She looked back at me and said, “I love you, mommy.” I hugged hear so tight. Suddenly, she got up and ran towards the forest. I noticed at the edge of the trees stood a group of children about her age. When she reached them, she turned, smiled and waved. Then they all disappeared into the forest.

I turned to the man, my eyes still filled with tears. I was unable to speak. He reached out his hands to hold mine and said, ” We will take good care of her until you return.” He then let go of my hands. As he did, I noticed that his hands were scarred. I was about to ask him when I could come back when everything went dark again. After a few moments I was back in my living room.

The next few days were full of emotions. Sadness for what I had missed and was missing. Happiness knowing my daughter was well and I would see her again.

…..And the world didn’t feel empty anymore.

 

 

Not For A Lack Of Stones

When we were first married, my husband and I spent most of our time together. As the years went by, he seemed to be away from home more and more. He was away from our village much of the time. I was lonely.

I had become friends with a man that sold eggs at the market. I found myself going to the market often. Each time I would pass by his egg stand, we would talk. He was always very pleasant and funny. He seemed to understand me. I found I was becoming attracted to him. Our talks made me less lonely.

One night when my husband was away, there was a knock at my door. It was my friend from the market. He asked if he could come in so we could talk for a while. I said yes. I poured some wine and we sat at the table and we started to talk. We had spoken enough in the past that we knew each other’s stories and troubles. As I talked again about my loneliness, he placed his hand on mine. It was the first time we had ever touched. He picked up my hand and softly kissed it. I kissed his in return. One thing led to another and soon we were in my bed.

Suddenly, the door to my house flew open with a terrible crash. I felt many strong hands grabbing my legs and pulling me out my door. I was pulled out into the street, my hand grasping my blanket. All I could hear were angry voices and all I could feel was the pain and helplessness and humiliation of being dragged naked through the streets. Finally, we came to a stop. I struggled to raise my head and look around to discover what was happening to me.

We were in a small courtyard. All around me were the angry faces of the leaders of my village. I rose to my knees and wrapped my blanket around me to try to cover up a small part of my shame. The village leaders kept pointing and shouting at me. Slowly, they stopped shouting and it became very quiet. I then noticed another group of men, separate from the men that had dragged me here. One of our leaders began to speak to them. He said,” This woman, (pointing his finger at me), was caught in the act of adultery. The Scriptures say she must be stoned to death. What do you say?”

One of the men he was speaking to bent down and began writing on the ground. After a while he stood up and said, “The one among you that has never sinned, you throw the first stone.” Then he bent back down and continued writing.

I lowered my head, shaking uncontrollably. I hugged my legs as tight as I could, waiting for the first stone to strike me. I wondered how many stones would have to hit me before I died. I thought about how painful it will be and how long the pain would last. I also thought about the shame of how I would be remembered.

It felt like an eternity had passed by, but nothing happened. I kept my eyes closed. The only sound I finally heard sounded like stones hitting the ground and footsteps fading away.

When I gathered enough courage to look up, I found I was there all alone, except for the man that had been writing on the ground. He asked me, “Do you see any of the men who were condemning you?” I answered, “No”. Then he said,” I don’t condemn you either. You are free. Go and don’t sin anymore”.

 

Re: John 8:2-11 (Bible)

 

 

 

A New Table

My name is Demikus. I am a citizen of Rome. I was born in Rome. I have lived here all my life. And I am a carpenter. I make furniture. I’m pretty good at it, if I do say so myself. My wife’s name was Salara. She died 4 years ago giving birth to our only child, our son and my joy, Justic. He was born with a body and mind that, though beautiful, do not function for him. He rarely moves, and when he does, his movements are slow and contorted. His eyes, though deep blue like a clear summer sky, have never seen me or shown any sign of recognition of anything. When his eyes are open, he just stares blankly past me. Except for a few and infrequent low groans or moans, I have never heard his voice. I love him with more than all my heart. He is a constant joy for me and a never-ending reminder of the love of my life, who gave her life so my son could live. Ever since the moment he came into the world, we have never been apart. He is always with me. When he was small, I would carry my tool box in one hand and Justic in his basket in the other. Now that he’s 4, when I go out to work, I carry him on my back, in a pack I made for him. My neighbors and my customers now think of us as one person. Where I go, he goes. I think he is happy. I guess I choose to believe he is happy.

A man came to Rome about a year ago. He arrived under guard and moved, or a better way to say it, was put into a house across the city and has remained there ever since. He is not allowed to leave and the house is continually guarded. I have heard he is allowed to have people in and his friends are allowed to meet his needs, but he never leaves the house.
There are many rumors about who he is,(or was). Some say he was a powerful Roman official that got on the wrong side of Caesar. Others say he got on the wrong side of some Jewish leaders. Who knows? Anyway, it’s none of my business. That’s what I thought anyway, until last week.

A man I had never seen before came to my house the Monday before last. He said he had a job for me. His friend needed a table. The table he had was not large enough for him to work on. I asked the man what kind of work his friend did. He said he was a writer. He told me the size of table he needed, I told him the price I would charge, and he agreed. He told me the location of the house were I would be delivering the table, paid the deposit, and asked when I would have it finished. I told him a week and he nodded his head in approval and left.
So, for the next week, Justic and I worked on the table. Measuring, cutting, fitting, sanding. I would do the physical work, and my son would be by my side, encouraging me. When the table was finished, I tied the pieces on my pull cart, loaded my tools and set Justic in his pack and carefully placed him on my back. I took hold of the pull poles on the front of my cart and my son and I started our trip to the customers house.
As we approached the location the man had indicated, I asked a group of people sitting at a cafe if they could tell me where the house was that matched my description. A short time later, we came to the house. I was surprised to see two soldiers guarding the front door. As we approached the door, one of the guards asked me to state my business. Right when I was about to answer, the man that had ordered the table came out the front door and explained my business to the guards. They moved away from the door so Justic and I could carry the new table inside. After being shown where the table was to be assembled, we brought it in and put it in its place.
When we were finished, the man paid us. As we were about to leave, the man said the person that I had built the table for would like to speak to me, if I had the time. I agreed and he directed me to some stairs he told me led to a terrace where I would find him. We climbed the stairs and came to a bright and open terrace. There was a man sitting on a chair in the middle of the space with his back to us. As we approached, he rose from the chair with substantial effort and turned towards us. He was very old and had snow white hair. His face was cracked and wrinkled and marked with much more than age. But in the center of this ravaged face were two eyes I have a hard time describing even now. They seemed to pierce straight into my heart. They showed so much wisdom, strength, compassion, pain and heartbreak, I could hardly look into them. He offered his hand. I grasped it. It was even more twisted and scared than his face, but steady and strong. He said,”I have been so wanting to meet the two of you.” Most people only address me, and ignore Justic. I told him, this is my son, Justic, and I’m Demikus. He said, “My name is Paul”. There was another chair in the corner of the terrace. He pulled it out and placed it next to the one he had been sitting in and asked, “Would you mind if we sat and talked for a while?” I told him that I wouldn’t mind and prepared to bring my son around to my lap so I could sit down. But before I got him settled, Paul asked, ” Would you mind if I hold him while we talk?” Taken by surprise, because no one had ever asked that of me before, I hesitated for a moment, but then handed my precious son to a man I had just met. He gently cradled Justic in his arms, and as we talked, he would slowly rock him back and forth. We talked for about an hour. I told him about my growing up in Rome and learning to be a carpenter. He told me his best friend is a carpenter. I told him how hard it was losing my wife and what a joy Justic was in my life. He told me storys about all the places he had been and being shipwrecked at sea more than once. It started getting late, so I told him we had better start for home. With that he gave my son a kiss on his forehead. He gave him him a last gentle hug. As he hugged Justic, I noticed that Paul was saying something to quiet for me to hear and then handed my sleeping boy back to me. We said goodbye and as I approached the top step to go down, I turned and the old man smiled.
Justic slept all the way home. When we arrived, it was late. I placed him carefully in his bed and he stayed asleep.
The next morning as the sun rose in my window and it’s rays rested on my face, a shadow moved across the light for a moment. I sprang to my feet to see who was in my room. I saw a small figure standing, looking out the window. As my eyes focused, I discovered it was my son! I ran over to him and embraced him. I turned him around so I could look at his face. He was smiling and for the first time I saw him in his eyes. As I cried, he hugged me like he was trying to comfort me. The whole time he was smiling. Was this real or a dream. I took a couple steps back and he followed me. A bird landed on the windowsill and chirped. Justic turned towards the window, pointed his finger at the bird, and also for the first time laughed. This was no dream. My precious son was well. I spent the next few hours watching him and playing with him. We went to all our neighbors and I introduced them to my son. All they had ever seen was the way he used to be and everyone was amazed and asked how this could be. I told them I had no idea. But I thought to myself, I do have an idea. That afternoon, Justic and I started out to see Paul again. I had to find out what had happened. Somehow, he had given me my son. And as we traveled, rather than riding on my back in silence, I felt my son’s hand in mine and heard his laughter as we walked together.

I Have Joy

I started writing this blog because I have Parkinson’s disease. I thought it may be interesting to bring you along with me on this journey.

Life is a journey. Some parts of the journey are interesting and some are not. Even though more and more people are having to walk this Parkinson’ life than ever before, most people have no idea what it’s like to live this life. I thought that keeping you up to date on any insights I hoped to be able to share would be of some value. I was hoping to learn life lessons that would help me and maybe help other people live happy lives with some kind of challenging condition that won’t go away. I was surprised by how I felt when the doctor told me that I had Parkinson’s disease. It was a weird combination of relief, happiness, and freedom. You would expect to feel something like fear or sadness when you are told you have a progressive, degenerative brain disease that there is no cure for. I felt neither of those things.

For some time before the diagnosis, I had not felt good. I had constant pain and a host of unwelcome and uninvited problems with my body and mind. I was suffering. What made it worse was trying to find out why this was happening to me and find a way to make it stop. Being God’s child, my fear was that I had done something that caused this to happen to me. Did I let something in the door of my life that gave it the right to do this to me? Or was it something I did to take me out from under God’s protection leaving me vulnerable? My life had not been a perfect life. I do make wrong and stupid decisions from time to time. And I believe like most people, I struggled with repeated sin and haven’t always chosen what I knew was right.

When you are saved at 6 years old, I don’t think you can say you were a sinner saved by grace. I believe in the age of accountability and when I reached it, I had not yet become a sinner. (I know every person is born into sin because of what our first parents did in Eden. I’m referring to having to be responsible for personal sin). Every person is responsible for the things they do that are wrong, saved and unsaved. The difference is the unsaved have no way out and are totally subject to the consequences of their actions and at the mercy of the adversary. We that are saved are also responsible for the consequences of our actions, but we have the opportunity to be forgiven, because we have a Father that forgives. Both the saved and unsaved are subject to this fallen world along with being in danger from the trains we willingly lay down in front of. The rain falls on the just and the unjust, the drought also hits them both.

There I was in the parking lot of my doctor, having suffered the last few years and trying the whole time to find out why and correct anything I had done or not done to cause it, not being able to put a name or a face on my tormentors. But now, someone had just given them a name, Parkinson’s disease. For some reason, that made me feel better. I still had pain and all the symptoms, but now there was also hope. Hope that there were tools to battle this previously unrecognized foe. Hope that there were people that had the wisdom and knowledge to fight this foe with me. I am still coming to terms as to the “why I have Parkinson’s”, but the why doesn’t really matter to me anymore. I just believe that God knows what He is doing. It’s my job to trust Him, do what I know is right, following his command to love Him and love others.

The path this journey is taking is getting steeper and more difficult to walk. I have lost my ability to work. Many of the things in life that I used to enjoy I no longer care about or I have lost the ability to do. My body is becoming less cooperative and rebellious.      But I’m happy! I have joy. The joy of having the best and most interesting person I have ever known as my wife. The joy of having three children that, if it were possible to choose your children, I wouldn’t have even come close to the fantastic ones I got. The joy of bringing into our family the perfect people our children chose to marry. The joy of grandchildren. The joy of having a God that is working endlessly in the most microscopic recesses of my life. The joy of friendship and family, where the line between them becomes blurred. The joy of the anticipation of heaven.                                                              I have joy!